This article is reprinted from the A.T. Quarterly, Volume 1, Number 2 (1990).
One of the chief aims of P.L. 100-407 is to provide federal assistance to
States to help each one develop a statewide program of "consumer responsive" assistive
technology services. Indeed, one of the few requirements the law makes of States is that the
assistive technology service system each designs and develops be as truly responsive to the needs
and preferences of people of all ages with disabilities and their families as possible. However,
once having said this, P.L. 100-407 leaves it to the discretion, ingenuity, and hard work of each
state to develop a common sense understanding of how best to make its assistive technology
service system measure up to this important yardstick.
This is no easy task. No set definition currently exists in federal law or its regulations to
help states differentiate between what makes some assistive technology services "consumer
responsive" and others not in the least attentive to individual needs or differences. Perhaps no
clear and concise definition of this vital concept can or ever will be developed. But some states,
along with consumers, practitioners and others, are beginning to decipher what separates a
consumer driven service system from one that merely drops technology into people's hands and
lives and then walks away.
The principle difference between the two approaches, according to the recent publication
"Quality Indicators" by the S.M.A.R.T. Exchange, a regional information exchange project of the
National Institute on Disability and Rehabilitation Research, and the United Cerebral Palsy
Association, is that the responsive system makes a conscious effort to not only 'deliver the
technology' but (actively involves) consumers as decision making partners in the planning,
delivery and evaluation of services." In turn, such an effort is exemplified and translated into
practice by an organization or system's demonstrated commitment to the belief that:
-- People with disabilities benefit most from assistive technology and services that they,
their families, or advocates have played an informed and vital role in assessing and selecting.
-- The continued satisfaction of the individual using assistive technology, his or her family,
or advocate is of primary importance in achieving success.
-- Individuals with disabilities, their families, and advocates must have the greatest
involvement in and ultimate control over the design, delivery, and evaluation of AT services.
-- Assistive technology must be used to enhance the independence, integration, and
productivity of people with disabilities in school, at work, and in the community.
-- AT services, policies, and practices must be flexible and foster organizational change in
order to best respond to the needs of people of all ages with disabilities and their families.
-- People of all ages with disabilities have a right to live in an accessible society and to
have access to adapted materials and technology that enables them to lead productive and
satisfying lives.
The same publication gives six steps that both statewide AT service systems and smaller
organizations can take to ensure that their services are truly responsive to the needs and
preferences of individuals with disabilities and their families. These steps include:
-- involving people with disabilities, their families and advocates in all phases of the
planning and development of AT services;
-- appointing such individuals, their families, and advocates to governing and policy-making
boards and committees;
-- valuing and soliciting the active participation of persons with disabilities, their families
and advocates in all stages of the AT service delivery process;
-- employing qualified individuals with disabilities in staff, consultant, and volunteer
positions;
-- providing training to individuals, their families and advocates to enable them to develop
knowledge and skills in such key areas as:
There is no single right or wrong way to go about designing a reliable, responsible, and
responsive AT service delivery system to benefit people of all ages with disabilities and their
families. Nor is there a precise roadmap for showing us how to reach our final destination on
what promises to be a long journey. But by plodding along, taking one step after another (as
outlined above) and keeping true to our commitment, we will get there one day.
How will we know when we finally reach our destination? We will know it when we see
it.
The A.T. Quarterly was a newsletter developed by the RESNA TA
Project under a contract with the National Institute on Disability and Rehabilitation Research
(NIDRR), U.S. Department of Education (ED). The content, however, does not necessarily reflect
the position or policy of NIDRR/ED and no official endorsement of the material should be
inferred.
-- and, informing people with disabilities, their families, and advocates: